Disability advocates say DOJ memo threatens community-based care : NPR


Robert F. The exterior of the Kennedy Justice Department building is photographed on May 4, 2021 in Washington, DC.

Robert F. The exterior of the Kennedy Justice Department building is photographed on May 4, 2021 in Washington, DC.

Patrick Semansky/AP


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Patrick Semansky/AP

The Justice Department released a memo this week that quietly calls into question decades of civil rights protections for disabled Americans and stoked fear and anger among advocates and families.

The memo, an opinion from the Office of Legal Counsel, argues that states are not required to provide home or community-based care to disabled people who need assistance. These services allow many Americans with disabilities to continue living, learning, and working at home or in their own communities, surrounded by family and friends.

“It is now the position of the United States government that people with disabilities do not have the right to be part of their communities,” says Alison Barkoff, a health law and policy professor at George Washington University who led disability law and policy efforts during both the Obama and Biden administrations. “I cannot overstate how significant this change in situation is.

Without the federal government requiring that states provide these services — to help people with disabilities integrate into their communities — advocates and legal experts warn that cash-strapped states could cut them and return to what was once common practice: the de facto segregation of disabled Americans in nursing homes and large institutions.

The reaction from the disability community was intense.

The American Association of People with Disabilities said, “As America prepares to celebrate 250 years of independence, (this memorandum) threatens to take our country back to a dark and shameful era of ignorance and cruelty.” “This interpretation would open the door for states to store people with disabilities in institutions out of sight and out of mind.”

Shira Wakslag of The Arc of the United States, a nonprofit disability advocacy group, said, “This opinion is a direct threat to decades of progress toward living in the community for people with disabilities.” “People with disabilities should not be forced into institutions because a state refuses to provide services in the community.”

The Justice Department did not respond to NPR’s request to clarify its position as well as why it is changing course after decades of legal and bipartisan support for community services.

What does the law say

The new memo raises questions about what legal experts say has been settled law for decades.



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